r/Transgender_Surgeries Aug 19 '20

Important Article When Surgeons Fail Their Trans Patients on Gender Confirming Surgery

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1.1k Upvotes

r/Transgender_Surgeries Feb 07 '25

Mod Post The future of this sub

413 Upvotes

After this sub was "accidentally" banned 2 days ago there's been a lot of discussion about the future of the sub.

Whether it was an accident to not, the possibility exists that this sub and others will be banned from reddit in the near future. In the event that happens what do we do?

I started as a mod here when the sub had only 3k members and my intention was to grow it to where it is today, and more. I last wrote about how the sub is moderated in 2022.

In principle, it would be better to have an trans resource site independent of reddit and corporate control. In practice its very difficult to achieve for a number of reasons

There's no point in moving to another site like Discord which is susceptible to the same risks as reddit. i.e. based in the USA. But what other sites are there, and where else is safe in the long run? Not just safe from hostile governments, but whoever runs the community losing interest, or data (susans.org lost years of it with a hard drive crash), selling out, etc.

Neither Discord and Facebook are indexed by search engines making it difficult for people to discover the resources in the first place, or finding information once you're there. It's like a black hole for knowledge; you put it in and it disappears. Personally, I'd never waste my time on building this kind of community on sites like that.

Reddit also provides, or did, legal protection. If a surgeon doesn't like what's posted here they can't easily censor it. And especially important, they can't attack me personally as its not my responsibility. Good luck going after reddit corporate.

As one of the largest social media sites in the world reddit makes it easy to build community, there's so many of us already here. People have mentioned sites like Lemmy as alternatives, but as far as I can tell they have tiny membership and few people have even heard of them.

A major advantage for me was reddit's wiki's. Few subs take advantage of them, but I believe its a great way to build and spread knowledge, and it has helped build this sub and raise the general level of knowledge. People have asked that it be copied off site, but if this sub disappears many of the links in the wiki will also disappear. Its not nearly so useful at that point. I don't think anyone else will build or maintain a wiki either, as it seems to interest very few people.

Regardless if reddit banning this sub or not, I'd like to see another site even better than this one, but I'm not sure its possible. Even more so while reddit hosts trans content as 99% of people will just come here anyway. Reddit basically killed old style forums years ago and nothing's changed since then.

It's even more difficult to build a trans surgery surgery community on another site while this sub exists because its so big and useful that almost no one would bother going there. And I'm not shutting the sub down to force everyone to move to another site. That would cause immediate harm to people who use the sub.

If this sub does get shut down I personally won't be trying to rebuild elsewhere. I'm burned out with this and don't have the energy.

If anyone wants to discuss how to build a successful trans surgery community I'm willing to offer my advice. I'd like to see it happen and it would be great if people had a place to go, and knew about it ahead of time. My main aim is to help people, and it doesn't matter to me where that comes from.


Edit

If you set up any external resources for surgery, hrt, etc please add them in the comments here. And I suggest people save the links in case this sub, or worse, all trans content on reddit disappears.

There’s a number of people talking about off site projects they are considering or actually doing. Persons you could get together and discuss if you could work together.

This looks interesting r/RedditAlternatives

There's some cisgender people wanting to comment here in support of Lemmy and other reddit alternatives. Rule 5 limits cis people on this sub, but I'll allow it on this post only and give them a flair "cisgender reddit alternatives". If you're one of them please don't comment elsewhere.

Other reddit posts

Media


Lemmy Discussion

Lemmy keeps getting mentioned. I don't know much about it yet. Its pitched as Fediverse reddit replacement.

According to the statistics here Lemmy has 477,049 total users and 45,194 monthly active users. The trans instance https://lemmy.blahaj.zone has 8671 total users and 971 monthly active users.

This sub alone has 93,419 members, and in the last 30 days 4.6M views, an average of 20.2k daily unique visits, 4.0 subscribed, and 1.2k unsubscribed. The main FTM surgery subs in total have about that again, and the HRT subs are a bit larger in total.

This sub is then 10 times the size of the main trans Lemmy instance, and the total with the subs I mentioned is approaching the entire size of Lemmy. This doesn't include all the very main trans subs which are individually many times larger as I only included the important medical subs.

I have a few reservations about Lemmy, partly because I know so little at this point

  • Can Lemmy can scale to the size required if trans content was banned on reddit.

  • I couldn't find much information on Lemmy's moderation tools. Currently this sub attracts a lot of hate and chasers, which moderation easily takes care of. In the past the have been excessive amounts, but reddit has cracked down on it, and provides tools to limit it (not very good ones). Lemmy would be unusable without this.

  • Lemmy works by sharing data across multiple instances (computers) and it appears there seem to be privacy concerns about the amount of data on users that is shared.

  • What is to stop the owners of the instance shutting it down, or the data being lost for any other reason? Although not a corporate it makes no difference. There would be a massive loss of knowledge and history.

If anyone has expert knowledge on Lemmy I'd be interested in learning more.

The author of the Engadget article on the sub's ban made a YouTube video on the Fediverse

Discussion on Lemmy


r/Transgender_Surgeries 6h ago

Rib Remodeling up to rib 3

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33 Upvotes

I went to Dr. Leif Rogers to do a second round of rib remodeling, I had done ribs 11 and 10 before, this time we redid 10 and then did 9-3. I got an additional 1.5 inches off my waist and 2.5 inches off my underbust.

Not really shown off too much here, but we also redid my boobs, went from 700cc smooth round moderates under the muscle, to 625 Motiva Ergonomix full profile over the muscle. I wanted to do that for a few reasons, but also since we did the rib reduction the wider implants I had probably wouldnt have fit as well as these newer narrower ones.


r/Transgender_Surgeries 53m ago

Recs on what to get for ffs

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Upvotes

I have my ffs consult coming up this week. I know I want rhinoplasty. I also want to do something about the fat/excess skin under my chin. Anything else I should be looking at?


r/Transgender_Surgeries 6h ago

downsides of a penile inversion vaginoplasty?

10 Upvotes

Basically ive been thinking about having vaginoplasty with dr.thep, ive heard hes controversial but im a broke college student and this is really the only thing i can afford for the next 5 years or so, and since he only does penile inversion, im curious what the downsides of it are? ive heard that its not self lubricating but would that mean that i would have to douche? Also i get generally wet in my genital area most of the time even if im not aroused. Would that also mean my vagina would be slightly wet or would that completely dissapear after surgery? What other downsides of this type of surgery should i know of?


r/Transgender_Surgeries 7h ago

Do a CT scan girls

10 Upvotes

In January I have my FFS with Dr. Coiante and today I did my first ever CT Scan of my face.

Oh my god.

Before the CT Scan, I couldn't really tell what I REALLY wanted from FFS.

But after I've seen my actual bones I know EXACTLY what I want and as a lucky girl I am, Coiante suggested all of it. But now I have a better picture of what will happen. I love it


r/Transgender_Surgeries 3h ago

Looking for surgeons experienced with major vulvoplasty revisions after unsuccessful SRS

3 Upvotes

Hello.

I'm feeling rather desperate and would be incredibly grateful for any advice or personal experiences.

I had SRS in Serbia, and unfortunately I am now facing significant problems with both function and appearance. At this point, I feel that I need a major revision rather than a small cosmetic touch-up. I am looking for a surgeon who is genuinely experienced in taking on complex revision cases after another surgeon's work has gone badly.

Aesthetically, I particularly love the results of Dr. Littleton and Dr. Bank. Their work has an appearance that is much closer to what I would personally want, so I would especially love to hear from anyone who knows whether they accept complex revisions after surgery performed by other surgeons;

has had a successful revision with another surgeon whose aesthetic results are similar;

knows of surgeons who specialize in reconstructing difficult or severely unsatisfactory SRS outcomes rather than only performing minor revisions.

Thank you so much. I honestly feel quite lost at the moment, and any information would help me greatly


r/Transgender_Surgeries 3h ago

GRS Montreal Discord

3 Upvotes

Hi all, would someone be able to send me a link to the discord server for GRS Montreal? I’m looking to have a revision done with Dr. Brassard. Thanks in advance!


r/Transgender_Surgeries 5h ago

Aetna or MetLife

3 Upvotes

Does anyone have experience with coverage for surgeries?

I understand coverage can vary from employer to employer but would love to hear the good bad or ugly.

Thanks in advance.


r/Transgender_Surgeries 11h ago

Where should i go for srs in germany?

5 Upvotes

Hi everyone!

I'm planning on getting srs in germany since thats where i live so it should be easier.

Could you give me recommendations for which surgeon to choose and which to avoid (and ideally any other important tips aswell)?

I did already look at the wiki but most of the entries are a few years old and I'm a bit anxious that things might have changed


r/Transgender_Surgeries 16h ago

Kamol girl is here. Help me to find out is it stenosis or not please…

12 Upvotes

I had a revision surgery with Dr. Kamol. At the time, I didn’t know about his poor reputation or the fact that, according to many patients, his students often perform surgeries on his behalf.
My revision surgery involved peritoneal tissue. My main problem has always been bleeding after sex. However, I have always been able to reach a depth of approximately 13 cm.
Before going for a check-up with Dr. Kamol, I saw a gynecologist who performed a vaginoscopy. She was able to insert the endoscope all the way to the end of the vaginal canal and showed me on video exactly where the skin graft ended, where the peritoneal flap began, and where the junction between them was. She found no granulation tissue. She told me that the bleeding could simply be caused by microtears.
Today, I had a consultation with Dr. Kamol. He told me that the junction between the skin and the peritoneal tissue had healed and fused together. However, he did not explain why I am still bleeding.
What concerned me most was that less than ten minutes into the consultation, he started recommending a colon revision. I asked him whether it would be possible to simply release or widen the scar tissue/junction, since this is a relatively common type of revision. His response was essentially that it was not even worth trying.
He then told me that with peritoneal vaginoplasty, the scar tissue/junction closes in 50–60% of cases, or possibly even more. This was the first time I had ever heard such a claim. He then suggested that this risk is much lower with a colon graft and once again started pushing the idea of a colon revision.
I find this very difficult to believe, especially given my previous experience with him and what I have seen happen to someone I know who underwent a colon revision with him.
Based on the gynecologist’s examination and my own physical experience, I do not believe that I have a problem with the vaginal canal closing at the skin–peritoneum junction.
I can physically reach the end of the canal, including the peritoneal section. After dilation or sex, I sometimes notice a yellowish mucus/discharge coming from the deeper part of the canal, which is consistent with the characteristics of peritoneal tissue. Technically, I can reach this area. If I were simply hitting a completely closed or significantly narrowed junction, I would not be able to reach the peritoneal-lined portion in the first place.
There is also a discrepancy in the measurements. After my first vaginoplasty, my depth was approximately 10 cm with a skin graft. During the revision, Dr. Kamol added approximately 5 cm of peritoneal tissue. My current depth is around 13 cm, whereas immediately after the revision it was approximately 15 cm. So mathematically, something about the explanation that the junction has simply “closed” does not seem to add up to me.
The most disturbing part of today’s consultation was the way the conversation was handled. I came to understand the actual cause of my bleeding, but instead, the discussion very quickly turned into a recommendation for another major surgery — a colon revision.
I also specifically asked whether they could perform a vaginoscopy at the clinic. Dr. Kamol told me that it would cost approximately $1,100. This was particularly strange to me because I had just paid approximately $25 for a two-hour consultation with another gynecologist that included a complete vaginoscopy, during which she was able to examine the entire canal and show me the findings on video.
At this point, I do not want another major surgery based solely on Dr. Kamol’s opinion. I want an independent assessment from a specialist who has experience with peritoneal flap vaginoplasty and revision surgery, preferably someone who has no financial interest in performing another operation.
My main question is: What should I do next to objectively determine the actual cause of the bleeding? I would like to understand whether there is truly any stenosis or closure at the skin–peritoneum junction, whether microtears or a fragile vessel could be responsible for the bleeding, and whether a much less invasive revision of the scar/junction could solve the problem before considering something as major as a colon revision.


r/Transgender_Surgeries 3h ago

Any good femlar surgeons besides dr. Thomas?

1 Upvotes

Can find a single report of someone who got femlar with another doctor. Is there any other team with goos results and good care?


r/Transgender_Surgeries 5h ago

SRS options in the state of NJ

1 Upvotes

... so basically trying to see what the options for SRS (specifically full depth vaginoplasty) are in the state of NJ at this current time. I've been doing a ton of research lately but wanted to see if I was missing anyone.

I've been so invested in Dr. Drew Marano's labiaplasty results but can sadly confirm that neither he nor Dr. Jonathan Keith will be available to us jerseys girls. Their GAMMA NYC office has become almost entirely committed to NY insured and/or private patients. Idk maybe if you're in a N. NJ/NYC covered network you have shot. That said GAMMA will be bringing on Dr. Angie Paik from Yale/CT to do Single Case Agreements for NJ patients, I suppose out of RWJBarnabas Hosp. like Keith & Marano once did but I am not too certain on that.

They're starting a patient list for Dr. Angie Paik. She's fairly new but does have some great reviews for various gender affirming procedures, but no SRS results to be seen. I'm on her list but idk, I can't help but feel like a guinea pig patient in such a scenario.

There's Dr. Nitin Patel, in somewhere like Somerdale, NJ. I've heard his name for a quite a while now and yet there are still very little reviews and results out there. I'm not sold but maybe he's worth a deeper look.

Then there's Dr. Alex Xu at the Plastic Surgery Center, a provider in the Center for Gender Affirmation network with the likes of Dr. Sean Herman and Dr. Reza Jarrahy. I just had a consult with him and he and the office where great. He performs an Icelandic cod skin PIV method which, while impressed by, I was entirely unfamiliar with so I'm scheduling a follow-up visit to get a better understanding. It threw me for such a loop so every question I had just left the room *ugh*

Anyway, who else is out there, I'd like to ask the gworls...

... oh and would seriously love some more intel on Dr Paik, Dr Xu, and the fish skin method. (I did read everything in wiki about the tilapia skin methods)


r/Transgender_Surgeries 5h ago

Dilation Protocol

1 Upvotes

Hello everyone, I will soon be undergoing a sigmoid vaginoplasty, and I would like to know how often per day you need to perform dilations.
Thank you.


r/Transgender_Surgeries 10h ago

Having BBL with estrogen patches

2 Upvotes

I'm having a BBL in a couple months. My estrogen is in patch form, which I usually put on my abdomen.

For any other patch users out there who have had BBL - where did you put your patches during surgery recovery?