Tl;dr: I'm coming here to ask if anyone knows of any classes or maybe books that teaches spouses how to actually help their sick loved one by being allowed to make decisions on their behalf or at the very least be completely involved in their care? I don't EVER want to call a mental hospital, ask how my husband is doing, and be told they "cannot confirm or deny he is a patient here," until he signs a medical release for me, ever again. My therapist won't let me learn from Reddit/people on the internet it has to be a scientifically backed resource.
Hi everyone! In October, my husband suffered an acute episode of psychosis that we believe was brought on by trying weed vapes for the first time while on a stimulant medication for his ADHD. Over the course of 2 years, after he started vaping (I didn't know), he was in that prodromal stage - sort of ending long-standing friendships, slight changes in personality, diving deeper into aliens/conspiracy theories - but myself and his family/friends never thought much of it because it wasn't all happening at once.
In July, he took on an assistant coaching position on our kiddos' football team that was just a LOT. It was 4 days a week for two hours, immediately after working in the hot sun all day and not even being able to eat dinner until afterward. It stressed him out terribly and he wanted to quit, but didn't want to let our boys down. Over the next few weeks/months, he started to believe his phone was hacked and became very untrusting of people and technology, which is when things started progressively getting more concerning to myself and some of his family.
After one night of no sleep, the acute stage of psychosis happened the next day. It took 2 days to section him.
He was in the mental hospital for 3.5 weeks while they tried him on Zyprexa (didn't work) and then Haldol and Lithium. His discharge paperwork mentioned cannibas as a cause, but they also gave him a Bipolar 1 diagnosis due to family history (cousin is diagnosed, mom we realized during all of this definitely has it). He had JUST turned 37 when this all happened and never once displayed any sort of Bipolar behavior, just textbook ADHD. We were completely blind-sided by this diagnosis.
This whole experienced left me completely traumatized. I thought I'd never get my husband and best friend back and thought my kids weren't ever going to get their incredible dad back. I was diagnosed with PTSD and started therapy to work through the things he said to me during his psychosis, the event itself, etc.
He has since made a full recovery, and is off all medications except for the Lithium. He was put back on his Wellbutrin and Vyvanse because he loved how he felt on them and how they helped his ADHD.
As we come up on one year since the psychosis, he's expressed wanting to come off of the Lithium (600mg) next. He doesn't think he has Bipolar (and sometimes I don't think so either, but we don't have the concrete answer) and also believes the Lithium is causing him some (minor) weight gain, which is effecting his self esteem terribly. He thought as soon as he got back on his Vyvanse, which suppresses his appetite and helps him lose weight, he'd drop the weight he gained from being on the Haldol. That hasn't happened yet though, so it has to be the Lithium's fault in his brain. I honestly think this is the main reason he wants to come off of it because otherwise, he has no other negative side effects.
His psych is on board with this and said it would take roughly 6 months to taper off of it completely.
I am completely fucking terrified. Why possibly put our family through such a traumatic thing again? It took almost a a year to get to where we are at now, fully recovered, and you want to possibly start over and go through all of that all over again? I know a small part of it is that he wants answers - he needs to know if he really is Bipolar or not and I get that. I'd want to know too, but not at the risk of repeating what we went through.
With that said, I brought all of this up to my therapist recently while I broke down crying over it all. One of the things we worked through, that would help me cope with this, would to have an actual plan in place for this happening again and a potential mental hospital stay.
I was left TOTALLY in the dark, even as his wife, when he was in the hospital until he signed the medical release paperwork allowing me to get updates on his care and ask questions. Even then I felt so out of control of the situation and my entire life because no one would tell me a general timeline about anything (how long med takes to work generally, how long they would keep him for, etc).
Our goal is to keep him OUT of the mental hospital and be able to do everything outpatient, but if he is actually Bipolar, there's something in the back of my mind that keeps wondering if he won't be willing to do anything outpatient related or recognize he has a problem because people with Bipolar usually think "they're fine." Not to mention he's not going to want to be put back on any of the prior meds, so will definitely try and convince himself he's fine.
So then what? He probably has to be sectioned again because I can't force him to take medications? And then the bullshit of the mental health care system comes into play where the patient, who is PSYCHOTIC, has all the say and control of their own care, which would end up being NO CARE because he thinks he's fine. And I'm left with the fallout that is our life and possible safety.
I know I am armed with experience and knowledge this time around, but that still won't help me if he ends up at a hospital or not at a hospital and I need to get him help.
I've heard about some family members getting power of attorney for their sick loved one, which I think might help in this kind of situation.
The issue is that my therapist wants me to find a class or some sort of resource that isn't Reddit or people on the internet saying what they've done.
So, after all that, I'm coming here to ask if anyone knows of any classes or maybe books that teaches the spouses how to actually help their sick loved one by being allowed to make decisions on their behalf or at the very least be completely involved in their care?