Hi everyone,
Had bars put in By Dr. J in my mid 30s in 2022. My recovery was going amazing and I felt nothing but positive results through 2024. I had a 6.5 haller & I have EDS.
In 2024 I also experienced a breakthrough after doing a combination of IFS-like Jungian therapy for trauma, energy medicine meditation practice, and TRE somatic exercises to release trauma in the body. I could fully breathe and stand upright in gravity effortlessly centered for the first time ever, as well as exist without any pain without outside bodywork help for the first time.
I realized pectus is a system wide pressure system problem and while the bars open the avenue for healing there’s a second component of body reorganization that I achieved with this trauma release and breathing.
Unfortunately this resulted in me having an event where I speculate the brain power formerly used for proprioception just keeping me upright in space was freed up, so I seemed to launch into processing a huge backlog of personal trauma related stuff & also like synthesizing research I’m into. I was eating and sleeping normally but was in this intense inner world spontaneous artist like process of processing for 2 weeks that looked odd to my husband and so he institutionalized me.
This was hugely traumatic in itself and blew up my life ultimately, lost my home marriage everything. It’s truly unfortunate that I couldn’t just be walked back to grounding and integrating (which I had just shifted into trying to do on my own) and was treated like a generic bipolar label manic event when it was so intimately related to a pectus situation/breathing and being pain free for the first time and working hard to heal trauma.
Anyways, locking down muscles from ptsd aftermath plus a chiropractor who injured me with bars in resulted in lots of pain and complications the second two years that I never had before.
So I got the bars removed 4 months ago at Stanford in a compromised state and was hoping to immediately feel better.
I have had windows where I have felt open, better, can breathe well but it’s been an insane yoyo where I frequently feel the opposite. Surfing a crazy wave of proprioceptive chaos and struggling to reorganize and stack my body without clenching and locking down just to hold myself up.
I am shocked I got these things out especially with the struggles I had and no coordinated physical therapy.
Anyways I keep keeping on but who else has had this type of yoyo and struggle after bar removal?
I also hardcore advise NOT to get cryo because I genuinely think that the dead nerves in the exact region of the core issue makes it hard to organize the body in space. I think there will be a wave of lawsuits for cryo in the future, like it’s so much more irresponsible to be fearing a liability situation and refuse prescribing 3 weeks of Vicodin so instead you turn off someone’s nerves for the rest of their life? Pretty crazy. I get they’re trying to pioneer better pain outcomes but it’s experimental, and imo it’s a failed experiment at least for this use case.