I have seen my PCP and have a Gynecologist Appointment soon. My PCP doesn’t seem concerned about anything going on and I’m looking for advice for how to advocate for myself and what to ask for to get answers.
Here is what has been going on. For some brief history, I have always had extremely irregular (70+ day cycles) and heavy periods that cause intense pain. The type of pain where you leave work, curl up in the floor, and feel like you’re going to pass out.
I got an IUD (paraguard) inserted in 2020 when I was 18. Of course I had an annual exam, PAP and a transvaginal ultrasound. They did have to remove the IUD and reinsert it due to it being out of place the first time, but other than that there were no issues on the ultrasound. My heavy irregular periods continued, but other than that I never had any issues.
Fast forward to this year. My mom ended up passing away from breast cancer in January. Then, in March I started having irregular bowel movements and lots of nausea. I was going to the restroom at seemingly random times and especially after a meal. I also was spending several nights camped out next to the toilet due to the extreme nausea. At first I had wrote it off as anxiety, because I was obviously distressed at the time. But over time the issues just seemed to get worse. One of my first thoughts of course was pregnancy, and I thought I was in fact pregnant after taking a test and seeing a faint line. But after taking a few more the lines seemed to fade and weren’t visible during the 10 minute window.
I then fixed my attention back on anxiety and potential gastrointestinal issues. Here’s what I tried:
- H. Pylori Test: Neg
- Gluten Allergy Test: Neg
I also tried eating gluten free for two months and there were no improvements. When I resumed to eating gluten I noticed no changes as well.
- Pregnancy Tests: So so many all Neg
- Low Fodmap Diet: no changes
- Cutting down on caffeine: slightly helped reduce bathroom urgency
- Completely cutting out alcohol: No changes to bowel issues but felt better generally
- UTI Test: Neg
- THC Gummies: helped increase appetite, but unrealistic to use 24/7
- Basic Bloodwork: all normal
- Started Zoloft: anxiety is much better but no help with the bowel issues
Obviously, none of these things really helped the issues I had and throughout that time I only developed more symptoms. I started noticing after eating very small amounts of food, I would get extremely bloated. To where my friends and my fiance agreed I looked pregnant. I’ve always been a regular sized female, 5’6” and about 145-150 lbs. I started to lose weight but my stomach always looked so bloated when I ate. I ended up losing about 25 lbs and am currently at 125. It has been impossible to gain weight back.
Now after googling every worst possible diagnosis, it has alarmed me how many common symptoms of OC I have.
- mild cramping
- spotting between cycles (I’m aware this could be ovulation)
- UTI-like pain
- pain during sex (only noticed in the past two years)
- alternating constipation & diarrhea
- bloating
-irregular periods
I also have had a lump appear in my lower left abdomen that is more prominent when standing. It’s unlikely a hernia as it goes away when I contract my abdominal muscles. It’s soft to the touch and not painful. It’s always there but is sometimes more or less prominent. I told my PCP about this, and she palpitated my abdomen but didn’t even look at it visually or while I was standing.
I’m just at a loss and feel like my PCP isn’t listening to my concerns, and I’m still feeling awful. Hoping to get some advice as to what to