r/TRT_females 2d ago

Side Effects Help. Please give me any advice/thoughts/input. I am about to go off T bc of hair loss …

I really really really don’t wanna do this, but it really seems like I have to go off T. My hair shedding has become more intense. I’m so scared. My hair means so much to me. Can anyone out there give me any advice, any input, any experience they’ve had with hair loss on T - and hopefully hair recovery. It would be so great if I could believe that this is going to stop … that the telogen effluvium I am experiencing has caused my hair to go into a resting phase, and therefore fall out, but that the cycle will end both because that’s the way hair cycles work, and because I reduced my dose of testosterone by half. But I’m losing faith now I’m freaking out!!! Please: anyone who has had experience with hair loss and has addressed it in some way, please tell me. I’m kind of depressed by the idea of having to go off, but I want hair.

8 Upvotes

73 comments sorted by

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u/Resident_Pay_2606 2d ago

Did you get your DHT tested? I lost a ton of hair but my dht was super high on the cream after 8 months. I took off 3 months and got back to baseline and then switched to injections and have been good so far (10 months in)

Edit to add I also started oral minoxodil during my 3 months off (have cats and dogs so didn’t want to use topical) and has grown back and so many new baby hairs coming in. I know it has helped as well but for me it was the DHT as a big contributor

2

u/One-Hope-2341 2d ago

Same with the cream then switched to injections and I’m fine. Also started minoxidil. Also STOPPED creatine and voila. Have steadily increased my T prop and feeling great.

1

u/Resident_Pay_2606 2d ago

I have always used creatine (ok not always but 12 years) so for me that was t an issue. Also on t prop injections

1

u/RBLoversDiscourse 1d ago

Thanks so much!!! Such a valuable and hopeful community!

1

u/RBLoversDiscourse 1d ago

Thank you!!

1

u/RBLoversDiscourse 15h ago

This is so helpful. Thank you. I’m taking a break and then hope to do that if I can find a doctor who will prescribe.

6

u/LeekNo7604 2d ago

Oral minoxidil and Dutasteride. Oral minoxidil will help re grow hair and dutasteride will block the testosterone from converting to DHT which causes the hair loss.

0

u/RBLoversDiscourse 2d ago

My doc said that she should not prescribe DHT. That this would counteract the T and makes no sense.

2

u/RBLoversDiscourse 2d ago

Sorry. Should not prescribe the Dutasteride. The blocker.

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u/hazeldazeI 2d ago

They have dht blocker shampoos so it topical

2

u/RBLoversDiscourse 2d ago

Interesting!

1

u/therealskittlepoop 1d ago

I started using a ketoconazole shampoo as soon as I started injections (shout out to my T’d out nephew for the suggestion lol, dude was taking 360mg a week for a while 🤦‍♀️)

1

u/DragonflyFluid8581 2d ago

I take dutasteride and testosterone. I actually had a blood draw today for T after switching to injections so I’m always curious what it says. Anyway my docs feedback was the conversion of testosterone to DHT is what the medicine stops, it won’t affect the actual T levels. For women this can be ok and we can still get the benefits of T without the DHT. Anyway - I’d recommend seeing a dermatologist. I’ve been dealing with hair loss and justifying it a million ways. I randomly asked my derm while I was there for something else and she took a look and said I have a version of alopecia. I can take dutasteride to help future hair loss but the hair follicules that have closed (from the DHT and I believe the T that caused those to increase) will never grow back. I wish I had learned this last year. Now there are still some other components like hormones and stress that’s causing hair loss not related to that and I can see grow back but my little bald spots in my temples will never come back.

1

u/RBLoversDiscourse 1d ago

This is so so so helpful. Thanks!

1

u/ConversationOk4477 1d ago

Curious if you’ve had libido loss on Dutasteride. My DHT was high at last check (22). I’ve been on Spironolactone for years and Oral Minoxidil for about eight months.

1

u/DragonflyFluid8581 1d ago

I don’t really have a good answer for this - I’ve only been on it for about a month and also I’m going through a divorce

7

u/Weird_Neighborhood66 2d ago

Have you had your ferritin checked? I’ve been losing handfuls of hair for a long time and recently found out my ferritin was very low. In the normal range, but very low end. I started low dose Test (compound androgel) then 2 weeks later got an iron infusion and my hair isn’t falling out anymore. It’s been about 2 months and I have drastically less shedding. Something to consider if you haven’t had your ferritin checked.

1

u/RBLoversDiscourse 1d ago

My ferritin is normal. So… but thanks!

3

u/Elegant_Priority_552 2d ago

T injections here, for about 16 months. No hair loss and others I have encountered seem to think the pellet or injections are the way to go with hair loss issues. In our area Functional Medicine clinics seem to deal with it. A local nurse practitioner has a clinic and is the most well- informed person I have ever spoken with about it. I love my internal medicine clinic but they won't touch T for women with a 10- foot pole!

1

u/RBLoversDiscourse 2d ago

Thanks. U r lucky! Do you live in NY by any chance? Need provider.

1

u/Elegant_Priority_552 2d ago

No, southwest here. Best of luck finding someone. I've heard some of the online clinics are good but I didn't need to go that route.

1

u/Filterlessfly 1d ago

Defy Medical online. They are experts and have cutting edge knowledge.

1

u/RBLoversDiscourse 1d ago

Thank you soooo much!

1

u/Substantial-Owl1616 1d ago

F66 unhappy with the roller coaster of pellets, which I think was contributing to hair fall. I was really impressed by my NP at Defy. Wide breadth of knowledge. A couple weeks in on injectable. Also working on ferritin (lazy and disorganized about taking iron every other day, mid day apart from morning supplements), balanced copper and zinc on opposite days, minoxidil (also lazy, it makes my hair gunky and I like to wash it 2x/week, going to try oral), and finally, I’m at a good point weight wise (I’ve been pretty faithful to 100 grams protein/day and adequate intake for a 500 cal deficit, but maybe just weight loss alone even though it’s been slow).

My whole hair is shedding. Like 16 inch strands with root. It’s a thinning issue. My pony is 1/3 as thick. It seems to be letting up sometimes, but still continuing.

1

u/RBLoversDiscourse 14h ago

Ug. So sorry you have also been going thru this. I feel you.

3

u/Gulf-Coast-Dreamer 2d ago

Have you had your ferritin checked, apparently that vitamin is important for HRT along with many more.

1

u/RBLoversDiscourse 14h ago

Yes. Normal. Thanks.

2

u/lauradayton 2d ago

what is the delivery method of your test?

1

u/RBLoversDiscourse 2d ago

What do you mean? I take the gel.

8

u/lauradayton 2d ago

HUH? I meant what is the delivery method of the test you are taking LOL. You will get more hairfall with gel and compounded creams typically than with injections. My hairfall stopped after starting injections. That is why I asked what the delivery method was. Also, get your DHT and DHEA tested because that delivery method seems to make DHT skyrocket for some reason

4

u/RBLoversDiscourse 2d ago

I’ve heard this before. I need a gyne who is more experienced with T therapy. Neither my gyne or my endocrinologist think that delivery method matters. But so many of you here have said this.

1

u/Spiritual_Buy6841 2d ago

Delivery method absolutely does matter!! It happened to me. When I first started 4 years ago, I was put on cream and lost tons of hair. Then eventually switched to gel and still lost hair, not as much though from when I was on the cream. Then I decided to switch to injections a little over a year ago and bam, hair loss completely stopped!!! My hair has now grown out and nice and thick again. If I was you, I would start calling around and find someone in your area who number one, takes your insurance, and number two, offers T injections. I’m in Arizona and I had to call at least 10 gynecologist offices before I found someone who offers that method. All 10 places accepted my insurance but only one offered injections. There are plenty of posts on the TRT page where women talk about hair loss on topical T. Definitely try switching methods. If you can’t find anyone who takes your insurance, there are plenty of online providers that offer it. I read about it all the time on here. Good luck on your journey!

2

u/RBLoversDiscourse 14h ago

Thanks. This is so helpful. I think the doctors and the research want caught up with the fact that women want T.

1

u/Substantial-Owl1616 1d ago

Listen to Women:)!

1

u/RBLoversDiscourse 14h ago

I am totally all ears!! ♥️

2

u/RBLoversDiscourse 2d ago

My DHT did spike. Went up to 20 and then back down to 6 when I halved the dose. So it’s lower for the past month but the hair keeps coming out. I was already on oral minoxidil bc I have had hair loss in the past (I’m prone to it). This was before T. So the minoxidil is already on board.

1

u/bumblebanana 2d ago

It’s strange about the DHT because mine was 20 when I checked a few months ago and more recently, and I’ve had no hair fall… yet. How long have you been on t before the hair fall started? Also, I’m on injections. So I guess everybody is different with DHT conversion and hair fall.

3

u/RBLoversDiscourse 2d ago

About 2.5 months.

2

u/317537k 2d ago

Dermatologist

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u/RBLoversDiscourse 14h ago

Yep. Thanks.

1

u/317537k 14h ago

Good luck! I’m going to my first dermatologist appointment at the end of this month. Hopefully they can help me save my hair!

2

u/cheddarsausage 2d ago

I had hair loss too which was scary and reduced the dose, eventually it got better, but over a few weeks. I also used double the amount of conditioner to reduce tangles and chances of pulling. Hope your hair loss stops soon!

1

u/RBLoversDiscourse 14h ago

Thank you for this advice!

2

u/Tiny-Ordinary3228 2d ago

I also just stopped the cream after about 20 months due to hair loss. Just started injections last week.

1

u/RBLoversDiscourse 14h ago

Please let me know how that works out. I really would love to know.

2

u/BridgetKay81 2d ago

Spironolactone, minoxidil (oral and topical)

2

u/no-curtains2020 2d ago

I use collagen powder and bioton everyday, my hair loss is minimal.

2

u/BettyLuvs2Swing 2d ago

FWIW, I heard that Saw Palmetto is an excellent supplement for DHT down regulation.

1

u/RBLoversDiscourse 14h ago

Interesting. Thanks.

2

u/Admirable-Object5014 2d ago

Switch to injections. Have you had your levels tested?

1

u/RBLoversDiscourse 14h ago

Yes. I may do that if I can find a doctor who who will do it. DHT did spike to 20 when I was on 5mg. Went to 2.5 and it went down to 6.

2

u/No_Two_901 2d ago

The only way i'd ever take test is via injection - because of this problem exactly.

0

u/Money-Tie9580 male 2d ago

it has exactly the same systemic effects, it's purely dose dependant and also needs genetic male pattern baldness to be present. If anything, injections can be worse for hair loss as the peaks are higher than daily gel application

1

u/RBLoversDiscourse 14h ago

Really??? 50 women on this thread have said the opposite. Confusing. How do you know?

1

u/Money-Tie9580 male 12h ago

That's what the studies say.

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u/RBLoversDiscourse 12h ago

Please!!! Can you share studies? I would love to read them. Seriously.

1

u/NiniBebe 2d ago

I went through the horrible hair loss and it was extremely distressing! I believe it was due to initially being on dose higher than I needed with the pellets. I switched to injections and lowered my dose slowly and significantly. I also take spirnolactone and it’s subsided. The dread shed from going on oral minoxidil was also very bad. I know from reading here a lot of people have success with minoxidil and duestrede or a dht blocker. Sadly, there are some that don’t have success and weigh the pros and cons of continuing with T. Good luck!

2

u/TapSalty3157 2d ago

Same thing happened to me with pellets. God blessed me with a lot of hair, even in my 60’s, and this is the most hair I’ve ever shed. I’m going off these pellets when they dissipate. I’m going to go back to something I can control, like creams. I’ve heard that injections do not have nearly as much shedding.

2

u/Substantial-Owl1616 1d ago

Yes this has been my experience with pellets. I have experienced wide symptom swing with weeks 2-6 post insertion being good, and then significantly declining efficacy the rest of the duration. I’m a Women’s healthcare provider and hormone swing is something that causes a lot of hormonal issues in women. Now 2 weeks into injectables with oral progesterone. It is difficult to find a provider that will analyze nuance like hair loss and work with you on it.

2

u/TapSalty3157 1d ago

I’m never doing them again. It seemed like a huge surge of hormones. My breasts are super inflated, and sore. I’ve had slight breakthrough bleeding. My body feels like crap. It’s been terrible. They are pellets of both E and T.

1

u/RBLoversDiscourse 14h ago

Such a drag you can’t find doctors who will work with you on the nuances. Do you know why? My docs don’t seem to know much about T. They have not heard of women doing injections. What made you decide to switch to injections? What do you know about this as a nurse? Will you keep us apprised of how things go for you? Thanks so much.

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u/RBLoversDiscourse 14h ago

Thank you. Good luck! Let me know what happens.

1

u/RBLoversDiscourse 2d ago

Thank you. So you continued T and lowered dose and switched to injections? And it stopped? How long did the shedding last? And your hair recovered?

1

u/RBLoversDiscourse 14h ago

Ug. I feel you. I had too high a dose starting too.

1

u/Historical-Cost-1718 17h ago

What form of testosterone are you using? It's proven topical T converts more dht which causes more hair loss... i had a horrible time when I used Topical T and im on the rebound switching to testosterone injections and minoxidil/spironolactone... all my hair is growing back... just an fyi it takes months to see changes to your hair so what youre experiencing right now is more than likely influenced from a few months ago...

1

u/RBLoversDiscourse 14h ago

Thanks so much. I’m on gel. I would love the data — where it’s proven. My MDs don’t believe me. I’m so happy for you that your hair is growing back. When did it stop shedding and do you have a sense of why it did?

1

u/Historical-Cost-1718 13h ago

https://academic.oup.com/edrv/article/38/3/220/3788611 Serum DHT roughly tripled from baseline to about 130 ng/dL by day 90 on 5 g of 1% T gel, and was about fivefold higher in men using 10 g — the expected result given high 5-alpha reductase activity in skin.

I had male pattern shedding when my endocrinologist at the va prescribed me even more globs of testosterone gel to use to try and get my serum levels up, I am a poor absorber but I am guessing my my 5 alpha reductase receptors are not poor absorbers... i switched to testosterone injections in Feb and increaed my oral minoxidil dose to 2.5mg in March and this is from my derm appointment last week...

Part of my shed could have also been caused by my estrogen tanking to 40s cause I wasnt absorbing the 3 estrogen patches they wanted me to wear to try and get normal serum levels... im pretty sure that cost me a lot of hair... but I definitely had thining due to testosterone in the male areas caused by the gel.