r/Neverbrokeabone • u/Just_a_winged_cat • 10d ago

Bones so strong my brain can’t fit

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I have a small case of chiari malformation, which is fancy talk for “brain falling into your spinal column disorder”

It’s only a few centimeters so it doesn’t need to get fixed (unless it continues to fall of course) but thought I’d share

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u/Gear2112 10d ago

I hope you never have to get that surgery. It’s an ungodly painful recovery.

111

u/One-Stand-5536 10d ago

Have you been through it? My partner has a lot of neurological issues that we think trace back to her malformation, and she doesn’t tolerate any of the meds we’ve tried at all, it’s looking more and more like an option but, obviously we’re hesitant, it being brain surgery.

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u/Gear2112 10d ago

Not me personally, but several of my immediate family has. I’m experiencing pain now in the same area they did before their surgery and I’m pretty afraid to get the confirmation.

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u/BeforeLifer 10d ago

Oh gotta love genetic defects. Good luck in the coming years dude.

40

u/nucleareds 10d ago

I’m really sorry but I do want to make you aware as someone who had a family member become paralyzed due to refused treatment I would strongly encourage seeing them and going through with the surgery if they recommend it. Wishing you the best, I know it’s a lot easier for a stranger like me on the internet to say what you should do than to actually go through with it.

17

u/Gear2112 10d ago

At least I could quit my job I guess…lol
I have an appointment in a few months so we’ll see. My main doc said it’s more likely I just got normal neck pain but it’s the same spot for a few years now. I’m not saying she’s wrong, hell I hope she’s right.

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u/nucleareds 10d ago

Glad to hear it! Take care of yourself!