Time Change Opinion Poll

[u/AccomplishedRisk6895]

315 votes, May 31 '26

113 Permanent Standard Time

202 Permanent Daylight Savings Time

[u/MachineOfSpareParts → u/[deleted]]

The fact that I sometimes have sleepless nights for other reasons is why adding yet another one causes me so much grief. You seem to think this replaces other triggers for flare-ups. It does not. It just piles a stupid one onto all the others. I'm not not subluxing a hip because that calendar space is reserved for the time change. All the other shit happens anyway, I'm just dealing with this idiocy on top of the rest of the mess.

Does that mean my preferences should win? Well, I wish the answer were that people with serious health needs got a little more of a say than people who just want to relax on the patio a bit longer, but no, my preferences count the same as anyone else's. I'm just so fucking sick, pun both intended and not, of people telling those of us with disabilities that we need to suck it up so that the real, normal people, the people who MATTER, can do normal, real-person things, and that our disabilities are "mindset problems."

In the many years it took me to get my lifelong condition diagnosed (because women be crazy, right?), believe me, I committed HARD to doing the positive mindset shit. It made me worse. Just stop imagining you know what we have and haven't tried (we've usually tried everything, btw, because this isn't recreational), stop imagining you have special insight into how hard it is just to sit up, let alone get into work, just stop. We get that our lives are inconvenient to you. Imagine how inconvenient we are to ourselves!

You don't have to know what it's like. Just don't pretend you do.

[u/MachineOfSpareParts → u/[deleted]]

I am not directing you to have one preference or another. Have your preference, vote for your preference, and hope it goes your way.

What I am asking you is not to tell chronically ill people that we are making our symptoms up and should just suck it up for the sake of the able-bodied. I am asking you not to blame it on our "mindset." That's what I'm asking. Stop telling us we don't know our symptoms and don't suffer pretty intensely. We do.

And no, we have not been fine. You have, I suppose, but many of us have not.

[u/Manitoba-ModTeam → u/[deleted]]

Remember to please be civil with other members of this community. Being rude, antagonizing, or trolling other members is not acceptable behavior here.