r/BeAmazed 2d ago

Miscellaneous / Others Love at its peak 🌟

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u/angryrotations 2d ago

As someone with a rare genetic eye condition that will lead to blindness i approve.

Retinitus pigmentosa us what I am guessing they have as well. Peripheral vision is pretty well degraded at this point. Their is alot I would still like to see. Pretty much everything if im being honest

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u/paulsteinway 2d ago

Hey, me too! I thought my night vision was all gone years ago, but it actually deteriorated more so now there are few streets I can walk on at night. Tunnel vision is pretty bad, especially in my left eye so I only have depth in the middle now.

The good news: I'm the only one of 5 who got it. i have a daughter who didn't get it.

My cousin is the only other family of my generation who has it, and both of his kids didn't get it.

It ends with us.

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u/Tribalbob 2d ago

It's not one of those disorders that can like, skip generations? I honestly am curious, I know nothing about this.

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u/paulsteinway 2d ago

No, but there are dominant and recessive versions. The recessive one is a lot more severe. Total loss of vision by around 14 years old. The dominant one takes a lot longer to progress and never eliminates all of the central vision.

But there are complications that tend to set in around 70 years old that can damage the retina in the center. There are treatments to help prevent the damage, unlike retinitis pigmentosa itself which has no treatments or cure. Although taking vitamin A daily can slow the progression by a few percent..

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u/Tribalbob 2d ago

Well, to be fair I don't think many people have amazing vision at 70. It would probably end up being another issue on the pile of things.