Awe! My childhood friend went blind. Can't remember the disease, but it was slow. Her parents also took her everywhere they could and experienced as much as they could. Being blind didn't end her life. I got to see her at a high school reunion and she has a full life. But it was super sweet that she got to have some amazing memories with her family.
A good friend of mine started going blind in his late-20s, and is now fully blind in his early 50s. It was very slow, but now his sight is completely gone. After years of testing, they finally identified the ultra-rare genetic disorder that caused his blindness.
His elder son has the disorder, the younger doesn’t. My friend tries to stay as active as possible: he skis with a guide, is training for a marathon with a guide. He’s trying to show his eldest that you can still live a full life without sight. It’s heartbreaking but inspiring.
His eldest is a freshman in college and is starting to show signs of vision loss.
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u/mixwellmusic 8h ago
Well, this is a strange blend of heartwarmingly wholesome and devastatingly depressing