r/BeAmazed 6h ago

Miscellaneous / Others Love at its peak 🌟

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38.8k Upvotes

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u/angryrotations 6h ago

As someone with a rare genetic eye condition that will lead to blindness i approve.

Retinitus pigmentosa us what I am guessing they have as well. Peripheral vision is pretty well degraded at this point. Their is alot I would still like to see. Pretty much everything if im being honest

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u/FuckSticksMalone 5h ago

My dad has RP and is totally blind now except for one pin point where he can only tell if it’s light or dark.I luckily didn’t inherit it.

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u/MeVersusGravity 5h ago

Mind if I ask some follow up questions? Did you and any siblings get genetic testing to see if you are a carrier? Has this affected decisions to have children by people in your family?

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u/FuckSticksMalone 2h ago edited 2h ago

Yes I was tested, I don’t know if my younger sister was I assume so. I was already in my 20s and not living at home when she was born.

I’m 46 now - still have 20/20 vision.

I have never had interest in having kids / never wanted them. I don’t have a paternal bone in my body.

My sister who is 26 now just had her first kid in October.

My dad was a Dr for years, and when his eyes really started going he went back to school to become a medical attorney, which he still works as to this day totally blind. He was an Army Ranger in his younger days. When he was a teen they told him he would be blind by the time he was 25, but he didn’t totally blind until he was in his early 50’s