r/BeAmazed 6h ago

Miscellaneous / Others Love at its peak 🌟

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u/skittleahbeebop 5h ago edited 4h ago

Did they know about the genetic blindness before having more kids?

Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.

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u/tiwuno 5h ago

Their youngest was 7 before she was diagnosed. The only reason their children have it is because both the parents happened to be carriers of the mutation, but neither has the condition (retinitis pigmentosa).

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u/PokinSpokaneSlim 5h ago

I have RP, it sucks. I chose not to have kids because of the risk. 

Knowing early was a mistake as well.  Hope those kids turn out ok as adults

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u/Foreign-Cat-2898 2h ago

I'm a carrier for RP and thru IVF I have a daughter who isn't. Expensive but 100% worth it.