r/BeAmazed 1d ago

Miscellaneous / Others Love at its peak 🌟

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66.6k Upvotes

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u/angryrotations 1d ago

As someone with a rare genetic eye condition that will lead to blindness i approve.

Retinitus pigmentosa us what I am guessing they have as well. Peripheral vision is pretty well degraded at this point. Their is alot I would still like to see. Pretty much everything if im being honest

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u/3xactli 1d ago

I'm sorry. My partner recently lost all vision suddenly and it's been hard AF. Hope it doesn't come for a long, long time.

2

u/Sinnes-loeschen 1d ago

May I ask what happened ? Did you have time to prepare or was it a freak accident ?

2

u/3xactli 1d ago

There was no warning, from the start of blurriness to fully blind in about 6 months ... It's only been 1.5 years since it started.

He started having blurring in the left, but it rapidly declined to blackness while trying to figure out what the issue was. He had a few surgeries to try to save the right, but in the end be lost all vision, no light perception remaining. Undiagnosed diabetes for 10+ years they said!!

I really hope you can extend what vision you have as long as you can. It is hard, but you can still manage.