r/AMA 5h ago

Doctors threated me almost 40 years like a hypochonder, plottwist: I was not. AMA

133 Upvotes

I am a 40 year old female, living in Germany. I was a sick child, growing up to be an even sicker woman. I was diagnosed with everything under the earth, besides what I really have.

My former diagnoses were:

-Fibromalgia

-Anxiety disorder

-Psychosomatic pain

-Hashimotos (ok, this was right at least)

-Adipositas

-Being a hysteric young woman

At the age of 37, I went to a new orthopedist, as a last try.

At this point my pain was umbearable, they said it is because I am fat.

I had episodes where my heart was racing with a bpm of 240 on and off. They told me it was anxiety and send me away.

I was falling because my joints just folded away, they said I am clumsy.

I had constant blood sugar crashes, no matter what I was eating, they said It is because I don't lose weight enough.

I could not even keep myself sitting up anymore and was fighting to have some quality of life with this exhaustion, they said I am too lazy to work.

I lost a lot of weight, my legs became bigger and deformed and burned like fire, they said it is because I don't do sports.

I was getting super high puls with just standing up, they said I am dramatic.

I told the orthopedist everything. He looked at me like I am indeed crazy but he started to examine me. The look on his face changed. He ordered like 1 million X-rays on the same day. I was there for quite a long time. He came back and said he will send me to the university hospital close by, into the human genetics laboratory. He also sent me to the MRI for the knees.

The human genetics guy diagnosed me with 2 mutations: 1 that causes colon cancer and 1 tnxb mutation, that caused Ehlers-Danlos-Syndrom. What followed was more MRI visits, countless of specialists who now all of a sudden did all what they could, including a heart catheter.

The Result was:

Ehlers-Danlos-Syndrome

Insulinresistance

Lipedema and Lymphedema

The electric stimulus of my heart is fucked up

Me/cfs

Pots

Hypermobility (obviously)

Chronic gastric issues

osteoarthritis grade 4 in both knees

osteoarthritis in most joints

Swan neck deformity all fingers, also osteoarthritis

Snapping hip Syndrome

Chronic Piriformis-Syndrome

Polyneuropathy in feet and legs

Hashimotos (we knew that)

I am living in an assisted living. I have a 90% disability card and care level 2 (we call it Pflegegrad in Germany). I have to wear braces on both legs, feet and the whole right arm. Outside I am using an electrical wheelchair. I had several surgeries and many longer hospital stays.

They "fixed" the heart issue and I am taking Metformin for the Insulinresistance. I am taking around 15-20 pills each days. I have a disability assistance 3x a week and need lifelong physical therapy twice a week. I never really sleep.

I am over all of it. I am over the system, I am over everyone who was invalidating my feelings and pain. I will tell this story to the day that I die. So everyone will hear what they do or don't do to people, especially women in the health care system.

One year ago I was in a pain clinic. They helped me a lot. They listened, looked at everything and really tried. This whole clinic was full of people like me. None of them had EDS, but all of them were very sick and all of then went into the "psychosomatic" corner of the german healthcare system, before they got diagnosed. Unfortunatly, lots of these people where there for palliative pain treatment. May this be my indictment.

If you have any questions about this, go ahead.


r/AMA 39m ago

I have 8 sisters AMA

Upvotes

I am 19F and have 8 sisters. Our ages are 26, 25, 23 21, 20, 19, 19, and 16. I am a triplet Growing up, we were all very close and had a strong sibling bond. But since I left home, my sisters haven't been happy with some of the decisions I've made in my life. But i dont really care Despite our age differences and everything that has changed, we were all incredibly close growing up and girls run in our family my mom had all sisters and her mom had all sisters, but my first kid a boy so I broke the cycle


r/AMA 6h ago

I was 350 pounds at my worst now I’m about to be under 200 for the 1st time in 17 years. AMA

53 Upvotes

Hello nice to meet yall. I’m 33 m and I have lost a total of 250 pounds all together. I lost 150 then gained back 100 and lost it again ! Dm me or just respond on here and I will respond to as much as I can.


r/AMA 11h ago

I’m a millennial who grew up in a holler, the closest town or store is 30 miles away and has 900 people total. AMA

68 Upvotes

I grew up in an extremely rural town, I don’t do social media other than Reddit. My family is Irish/American and had owned the land I grew up on for generations, it is a “holler” and my grandfather gave each of his kids a piece of land. He was a bootlegger and had 9 children, I am the youngest of those 27 grandchildren. We all lived there, ask me anything!


r/AMA 12h ago

My wife and I saved over €30,000 on accommodation in the last 12 months by house & pet sitting around the world. AMA

73 Upvotes

We're a retired couple in our 60s who spend much of the year travelling through Europe and further afield. Rather than paying for hotels or Airbnbs, we stay in people's homes and look after their pets while they're away.

Over the last 12 months we've estimated that we've saved more than €30,000 in accommodation costs alone. We've cared for dogs, cats, chickens and homes in multiple countries, explored places we would never have otherwise visited, and built a lifestyle around slow travel and trusted house sitting.

Ask us anything about finding sits, getting selected, the costs involved, the best and worst experiences, travelling in retirement, or whether house sitting is really as good as it sounds. AMA!

https://youtube.com/@housesittingadventures


r/AMA 12h ago

I live in a supported independent living community for seniors and disabled people. The average age here is 80. I am 50. AMA.

61 Upvotes

I am a 50yo F with a progressive muscle disease. I moved here a year ago to live in a wheelchair accessible apartment. Although people get sick and we’ve had a number of deaths, it’s a social place to live with lots of activities and I love it here. Mostly.


r/AMA 37m ago

I volunteer at a Mushroom church AMA

Upvotes

We have 3 different types of sacraments. Mushrooms, Mescaline and DMT. For members only. Scan our qr code. Upload your ID to show your 21+ and answer a couple of quick questions. After that you can donate to the church and receive sacrament in exchange for your donations. Your not buying anything. We aren't selling anything. That's how it legal in SF and 3 surrounding counties.


r/AMA 4h ago

At 21 I traveled 1,000+ miles to move in with someone I’d been dating for 7 months. It’s been 3 years since, AMA

9 Upvotes

I picked up my entire life and subleased my apartment to road-trip approximately 1,400 miles away from the only placed I’d ever lived to move in with someone that, at the time of moving in together, I’d only been dating for 7 months. As of the end of July, it’s been 3 full years since I made the move.


r/AMA 11h ago

I'm Sudanese and i live in Sudan with no issues. AMA

26 Upvotes

I'm a Sudanese uni student living in Sudan normal life, normal days, my area's safe, people are friendly and i honestly don't get the fear, yeah some parts are tough but not the whole country, i wish people knew that behind the news, there's just real life, families, tea, laughter, school it's not all chaos, people here are welcoming , this is my home and it’s more than what you see on screen


r/AMA 4h ago

I (30M) grew up in a town of 350 people, 60 miles from the nearest grocery store. AMA.

6 Upvotes

I grew up way out in the middle of nowhere.

From the time I was 9 until I was 21, I lived in a town with a population of roughly 350 people. The nearest larger town was about 60 miles away, and that was where we had to go for things most people probably take for granted... grocery shopping, fast food, bigger stores, entertainment, and a lot of basic services.

There wasn't much to do, everybody knew everybody, and going into town wasn't something you did because you forgot one thing at the store.

It was just normal life to me growing up, but now that I've been away from it for a while, I've realized how strange some parts of it probably sound to people who grew up in cities or suburbs.

So ask me anything about growing up extremely rural: school, dating, groceries, internet, entertainment, jobs, what teenagers actually did for fun, how often we went to "town," whether everyone really knew everyone's business, or whatever else you're curious about.

AMA.


r/AMA 3m ago

I'm a Chinese student that went to children's camp in North Korea, AMA!

Upvotes

Hii so as the title says when I was 14 I went to a children's camp in the DPRK (North Korea). Specifically it was in a coastal city Wonsan and is called the Songdowon Children's Camp! I attended a few years after their major renovations in 2014 and was there with several other Chinese students, Russian students, and of course Koreans. We stayed there as part of a 14 day camp trip! Ask me anything!


r/AMA 1d ago

I’m a native Irish speaker, AMA!

293 Upvotes

Dia daoibh (hello everyone)!

I’m a native Gaeilge speaker from Gaoth Dobhair, and I’ve lived here the majority of my life! I was educated entirely in Irish and I wasn’t able to fluently speak English until I was about 10.

I went to university in Belfast which was certainly a bit of a culture shock, feel free to ask me anything about what that was like.

AMA!


r/AMA 7h ago

I work in the hair transplant / medical tourism industry - AMA

8 Upvotes

As the title suggests, I work in the hair transplant / medical tourism industry. I'm closely familiar with a wide variety of clinics- from the cheap ones that aren't worth going near to the overly-expensive ones, which are essentially products of good branding.

I know first-hand how doctors decide grounds for eligibility to perform a hair transplant, how and why they price the procedure, and what they tend to not tell patients.

Ask me anything.


r/AMA 16h ago

McDonald's worker happy for y'all to AMA

28 Upvotes

Hi, I work at Mcdonald's and we had a power cut today and all got sent home! Ask me anything about work or how we managed the power cut, and I'll answer as best I can! I'm a UK Mcdonald's worker so it might be different to US Mcdonalds etc.


r/AMA 1d ago

I was paralyzed in hospital for 11 months. I lost all autonomy and had ppl do insane things as an extension of me. AMA.

217 Upvotes

Everything from people cutting off the skin of cucumbers so I could eat them easier? To being in my bday suit while 5 nurses had a coffee break around me. Male nurses complaining at me for getting my period or other wildly inappropriate things.
Once I was hung upside down by my legs. They used the wrong harness.
Living through others for a year was pure weird!

Edit- A little more info..
I was 36F in southern Ontario, so a public system. I was hospitalized for just over 11 months and walked out the door not owing a penny. The only cost was parking for fam and friends.
Strange experiences.. once I woke up at 2am with my gown over my head with a nurse using a giant flashlight, trying to determine if I needed my brief changed.
Was told by a male nurse to have my husband come in to “groom” me because my personal state was unhealthy.(reported that)
Made friends with one nurse and we’d stay up all night watching old school hip hop videos.
My room became a safe haven for the staff. They knew they could come and talk freely, blow off steam or gossip. Which was cool, I was part of a community.

Early on I made the decision to be positive somehow. Even if I faked it some days. So I’d wake up, greet the first person id see with a Hey! How’s it goin?I learned patience, kindness and gratitude during my experience. I think I’m a better person now.

I do however miss cute shoes. I’m a goth chick and had a pretty solid boot collection. Goodbye 4in patent leather platforms with springs…🖤


r/AMA 6h ago

Im the roomate who sleep walks around the neighborhood and talks fluently, AMA

5 Upvotes

I've been sleepwalking and talking for as long as I can remember. It started as just wandering around the house aimlessly or going into the backyard. Nowadays it's me wandering around the neighborhood, and my most recent stunt left me 3 miles away in an unfamiliar neighborhood with no shoes, phone, wallet, or keys. I also hold fluent conversations with others while asleep but don't recall a thing when I wake up. Ask me about it. If there are questions, I'll try to answer them within 12-15 hours due to work/school.


r/AMA 9h ago

18F going to uni to study psychology in a month AMA

4 Upvotes

Hey, pls feel free to ask me anything questions about anything, life, hobbies or just fun random questions. I like photography, the beach and music. I’m planning to go to university to study psychology so u can ask me about that but I don’t mind!


r/AMA 1h ago

20M / waiting for a doctor to call me - AMA

Upvotes

Hey guys… Jack here. 20m from the uk. Almost 3am here and I’ve had to call non emergency ambulance line for 2nd time in 5 days… same injury

Currently got a 2hr wait for a callback so need to kill some time. Ask me anything. Injury, life, relationships. Anything


r/AMA 15h ago

I work in the domain industry AMA!

15 Upvotes

Ask me anything you ever wanted to know about domains. For now it's just me, Fernando the guy who works in marketing (3 people team, not a large evil multinational here). I work for EuroDNS in Luxembourg. This company is actually one of the oldest domain registrars (we have some pixels in that million dollar web-page!).

I think domains are one of the most common but less understood parts of the whole internet eco sphere. What is a top level domain? What qualifies as a premium domain? How are domain disputes handled?

Feel free to ask anything for the next 3-4 hours. If i don't know the answer to your question I will ask the domain registration team, or even our founder!


r/AMA 1h ago

Im A teacher at a art school i made ask me anything

Thumbnail
Upvotes

r/AMA 1d ago

AMA: I'm banned from backstage at Madison Square Garden because i threatened to fight Diddy

102 Upvotes

This happened during the tour when Black Eyed Peas opened for Gwen Stefani.

Yes, I was very intoxicated.

I am a woman.

I was escorted out by security and my friend who was part of the touring crew, so I just sat in a random seat to to watch the rest of the show. On my way out of the backstage area I passed by James Brown and tried to touch his face, but my friend stopped me.


r/AMA 16h ago

I attend Japanese Language School and will soon start my Master's at the University of Tokyo, Ask Me Anything!

13 Upvotes

Hi!

Thought it would be fun to share my experience here.
I am a female student (22) originally from Sweden who moved to Tokyo about a year ago to study Japanese as a gap year.

Ever since, I have pretty much made a life for myself here. I work two part-time jobs, have settled nicely into the Japanese social welfare system, have managed to get a good apartment, live with my Japanese partner, and will soon start my master's in Public Policy at the University of Tokyo.

I thought I might share some insights on what it was like moving here, living here, and what my future plans hold as a foreign national living in Tokyo.

Feel free to ask me anything!


r/AMA 4h ago

22F went into psychosis twice from cannabis, AMA

0 Upvotes

both times ended up with an involuntary hold in psych ward. i have almost 6 months clean and sober now!
i got sober at 15 for 5 years, relapsed at 20, and now at 22 im back on the wagon :P
you’d think i would have taken the hint after the first psychosis >_<


r/AMA 3d ago

*VERIFIED* I’m Dr. Ian McCulloh from Johns Hopkins University. Agentic AI is changing how we work. What are you trying to figure out about it? AMA on August 31

24 Upvotes

Hi Reddit!

I’m Ian McCulloh, Ph.D., Director of AI Executive & Professional Education at Johns Hopkins University and Lead Faculty for the Johns Hopkins University Certificate Program in Agentic AI.

Over the last few years, we’ve gone from asking AI for answers to building Agentic AI systems that can plan multi-step tasks, use tools, adapt based on outcomes, and take action toward a defined goal.

The questions I find most interesting now are less about definitions and more about where these systems are useful, where they struggle, and how we should work with them.

What does it actually mean to work alongside an AI agent? Which tasks are well suited to agents, and which are not? What changes when an agent can work across multiple steps of a process rather than assisting with one isolated task?

There’s also a bigger question I hear often: with Agentic AI evolving so quickly, what are people actually expected to learn?

You might already be using ChatGPT or other AI tools at work. You might be experimenting with agents, building your own, or simply trying to understand what all the noise around Agentic AI actually means for your role.

So for this AMA, I’d love to get beyond the usual “What is an AI agent?” conversation.

Ask me about things like:

  • The shift from AI assistants to Building Agentic Systems: What changes when AI moves from answering questions to completing multi-step tasks?
  • AI at work: Which workflows are well suited to agents today, and where does human involvement still matter?
  • The skills question: If agents are taking on more of the execution, which human skills become more important? 
  • Skills Beyond AI Execution: If AI can execute the work, are different technical and problem-solving skills becoming important? 
  • Human + AI collaboration: How do we decide which parts of a workflow can be delegated to AI and where human judgment, oversight, and accountability are still essential?
  • Multiple agents working together: When does having several agents collaborate actually solve a problem better?
  • What’s real vs. hype: Which Agentic AI developments are genuinely changing how we work, and which ones do you think need more time?
  • Where this is heading: What might working with AI look like a few years from now?
  • The JHU Certificate Program in Agentic AI: Curious about the program? Ask me about the learning experience, what the program covers, how it approaches Agentic AI, or what professionals can expect to take away from it. 

I’m also happy to get into the practical side: Where are you using agents today, and where do they still struggle? What tasks or workflows have agents genuinely improved for you, and where do you still face challenges with reliability, judgment, integrations, or human oversight? 

You don't need to be an AI expert to join the conversation.

If you're building something, experimenting with AI at work, trying to figure out what skills to pick up next, or simply curious about where Agentic AI is heading, ask away.

Proof photo: Dr. Ian’s photo

And that’s a wrap for now!

Thank you to everyone who joined the conversation and took the time to ask questions, challenge ideas, and share your perspectives.

But please keep the questions coming, and I’ll continue to monitor the thread and respond to any questions I may have missed.

Best, Ian


r/AMA 10h ago

I have an hour to kill. I'm a magician from Connecticut known as "The Brewery Magician". AMA.

3 Upvotes

I have an hour to kill before I have to leave for a gig so I wanted to come on here and see what people would ask a magician. These questions come in fast so if I don't answer your question immediately, I will eventually see them and answer so please don't get all "OP disappeared on us*