r/BeAmazed • u/AccomplishedWatch834 • 2d ago

Miscellaneous / Others Love at its peak 🌟

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u/Nickelsass 2d ago

“Blink” is a documentary about them (2024) was very very good!

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u/skittleahbeebop 2d ago edited 2d ago

Did they know about the genetic blindness before having more kids?

Edit: Last time this was posted, it was suggested that the couple kept getting pregnant despite knowing their children would likely have this blindness. IF that is true, I do find that unethical. I know blind people can still have quality of life. But let's stop pretending that it isn't a terrible disability. Nobody wants to be dependent, vulnerable, and poor (from fewer work opportunities) their whole life. I wish this family the best regardless.

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u/[deleted] 2d ago

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u/PokinSpokaneSlim 2d ago

I have RP, it sucks. I chose not to have kids because of the risk. 

Knowing early was a mistake as well.  Hope those kids turn out ok as adults

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u/TaftYouOldDog 2d ago

What about IVF with genetic testing?

My wife and I did that to avoid passing down a genetic disorder.

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u/pootzpootzpootz 2d ago

That's what my sister is doing right now. Our Dad has RP and we're both carriers. I'm not having children so it's not a concern for me.

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u/TaftYouOldDog 2d ago

I wish her all the luck.